Employment and work ability in individuals living with rare diseases: a systematic literature review

Bougas, N., Kangas, T., Vanthomme, K. et al. Employment and work ability in individuals living with rare diseases: a systematic literature review. Orphanet J Rare Dis 20, 193 (2025). doi:10.1186/s13023-025-03691-7 

These results show that individuals with rare diseases tend to have poor work outcomes, but methodological limitations hamper the understanding of health selection effects. Implications for future research and policy-making are discussed.

Employment and work ability in individuals living with rare diseases: a systematic literature review