Idebenone for the treatment of Friedreich´s ataxia

Now in Catalonia (Spain), the Idebenone is out of the National Health System (CatSalut), so far, the doctors could prescribe it, and the patients did not pay for the Idebenone , within the context of the current crisis the cuts are tremendous , and the Idebenone also was hit.
To achieve this, they shield in a rigorous scientific studies based on standard evaluation methodologies .... but help them to achieve their goals, stop paying for idebenone!. With this evaluation methodologies the studies selection and the graded are terrible, only those with bad results are considered right....and without listening the advices of the doctors experts in FA.

Gómez D, Paladio N. Idebenona per al tractament de l‟atàxia de Friedreich. Barcelona: Agència d‟Informació, Avaluació i Qualitat en Salut. Servei Català de la Salut. Departament de Salut. Generalitat de Catalunya; 2012.

Full text PDF ( English Abstract on page 9 )

363 Cardiac effect of high doses idebenone therapy compared to low doses in patients with friedreich ataxia

363 Cardiac effect of high doses idebenone therapy compared to low doses in patients with friedreich ataxia. D. Velasco Sanchez, J. Thérien, M. Vanasse, N. Dahdah, A. Fournier. Montréal, QuébecCanadian Journal of Cardiology
Volume 27, Issue 5, Supplement , Pages S192-S193, September 2011

Keywords: Heart involvement in Friedreich's ataxia (FRDA), progressive hypertrophic cardiomyopathy, idebenone, high dose idebenone (Hi-IDB), low dose of idebenone (Lo-IDB), paediatric FDRA patients, clinical and echocardiographic data -systolic and diastolic function, left ventricular wall thickness and mass index (LVMi), statistically significant LVMi reduction, improved mitral deceleration time with Hi-IDB.