Mostert M, Bredenoord AL, Biesaart MC, van Delden JJ., European Journal of Human Genetics (2016) 24, 956–960; doi:10.1038/ejhg.2015.239; published online 11 November 2015
In recent years, both medical research and the legal landscape have been changing as a result of the rapid developments in information technology (IT). Medical researchers are collecting, re-using and linking health-related and genomic data on an unprecedented scale, based on the presupposition that this research will significantly improve human health. Developments in IT have however led to an increasing concern about the effectiveness of existing data protection law, and the need for a more consistent and comprehensive protection of personal data was recognised in the European Union (EU).
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