Consensus clinical management guidelines for Friedreich ataxia

Consensus clinical management guidelines for Friedreich ataxia.. Louise A Corben, David Lynch, Massimo Pandolfo, Jörg B Schulz, Martin B Delatycki and On behalf of the Clinical Management Guidelines Writing Group; Orphanet Journal of Rare Diseases 2014, 9:184 doi:10.1186/s13023-014-0184-7

OPEN ACCESS (Summary of recommendations and process of developing the guidelines).

FARA FUNDED: Awesome document with the support of FARA. A knowledge upgrade which gathers the views of clinicians from several countries. It has been developed under the newest international standards of assessment and analysis of the clinical management of the disease.

Consensus Clinical Management Guidelines (Full Text Only Available on the FARA Website)

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Authors:
Executive committee: Professor Martin Delatycki, Dr Louise Corben, Professor Massimo Pandolfo, Professor David Lynch, Professor Jörg Shultz.

Contributing authors: Dr Laura Balcer (USA), Mr Ron Bartek (USA), Dr Claire Bates (UK), Ms Emma Campagna (Australia), Dr Louise Corben (Australia), Dr Miriam Cnop (Belgium), Professor Martin Delatycki (Australia), Professor Alexandra Dürr (France), Dr Anton Emmanuel (UK), Ms Jennifer Farmer (USA), Professor John Flynn (USA), Ms Lisa S. Friedman (USA), Dr Paola Giunti (UK), Dr Marios Hadjivassiliou (UK), Dr Michael Ho (Australia), Dr Grazia Isaya (USA), Dr Mary Kearney (Ireland), Ms Melissa Loucas (UK), Professor David R. Lynch (USA), Dr Caterina Marotti (Italy), Ms Sarah Milne (Australia), Dr Thierry Morlet (USA), Dr Andrew McGarry (USA), Professor Massimo Pandolfo (Belgium), Dr Jalesh Panicker (UK), Dr Michael Parkinson (UK), Dr R Mark Payne (USA), Dr Roger Peverill (Australia), Associate Professor Gary Rance (Australia), Ms Lucy Rodriguez (UK), Ms Kimberly A. Schadt (USA), Ms Lauren Seyer (USA), Professor Jörg Shultz (Germany), Dr S.H Subramony (USA), Dr. Kelly L. Sullivan (USA), Dr Adam Vogel (Australia), Dr Eppie Yiu (Australia), Dr Grace Yoon (Canada), Dr. Theresa A. Zesiewicz (USA).