Establishing universal guidelines will help ensure that all stakeholders (patients, caregivers and health professionals) can engage meaningfully in the developmental processes of healthcare initiatives. Given that health and disease affect us all, fostering collective involvement is essential for driving progress in this field.
Wednesday, February 12, 2025
Patient involvement in clinical trials: a paradigm shift in research
Pijuan, J., Palau, F. Patient involvement in clinical trials: a paradigm shift in research. Orphanet J Rare Dis 20, 63 (2025). doi:10.1186/s13023-025-03573-y
Living with Friedreich Ataxia: Carla, Maria and Nuria
Biogen. February 11, 2025
Watch below to hear Carla, Maria and Nuria share their stories of living with FA.
Editorial: The mechanistic investigation and emerging therapies for Friedreich’s ataxia
Dong Y, Chandran V, Soragni E and Lynch DR (2025) Editorial: The mechanistic investigation and emerging therapies for Friedreich’s ataxia. Front. Pharmacol. 16:1560808. doi: 10.3389/fphar.2025.1560808
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