"Both Sides of the Wheelchair": The Views of Individuals with, and Parents of Individuals with Friedreich Ataxia Regarding Pre-symptomatic Testing of Minors.

"Both Sides of the Wheelchair": The Views of Individuals with, and Parents of Individuals with Friedreich Ataxia Regarding Pre-symptomatic Testing of Minors. Lowe GC, Corben LA, Duncan RE, Yoon G, Delatycki MB, J Genet Couns. 2015 Jan 17. [Epub ahead of print]

The dilemma of how to manage the desires of some individuals and families affected by FRDA to access testing, when there is a lack of professional consensus