Regulating biobanking with children’s tissue: a legal analysis and the experts’ view

Elcke J Kranendonk, M Corrette Ploem and Raoul C M Hennekam; European Journal of Human Genetics (2016) 24, 30–36; doi:10.1038/ejhg.2015.59; published online 15 April 2015

The results of this analysis show that experts have no clear consensus about the appropriate rules for storage of and research with children’s material in biobanks. Development of a framework that provides a fair balance between fundamental paediatric research and privacy protection is necessary.


 Regulating biobanking with children’s tissue: a legal analysis and the experts’ view