Sunday, January 17, 2016

The involvement of patient organisations in rare disease research: a mixed methods study in Australia

Deirdre Pinto, Dominique Martin and Richard Chenhall. Orphanet Journal of Rare Diseases 2016, 11:2 doi:10.1186/s13023-016-0382-6

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 The involvement of patient organisations in rare disease research: a mixed methods study in Australia