Education and information needs for physicians about rare diseases in Spain

Enrique Ramalle-Gómara, Elena Domínguez-Garrido, María Gómez-Eguílaz, María Eugenia Marzo-Sola, José Luis Ramón-Trapero & Josefa Gil-de-Gómez; J Rare Dis 15, 18 (2020) doi:10.1186/s13023-019-1285-0

In conclusion, the study supports other investigations that have shown that clinicians lack easy access to educational opportunities and information resources regarding rare diseases. It is imperative that the public health system includes ongoing training on rare diseases in programs to improve the training of physicians in both primary care and specialized care.

Education and information needs for physicians about rare diseases in Spain