Health care, social, educational, and employment needs of individuals affected by rare diseases and their families in Catalonia, Spain

Calmaestra-Carrillo, E., Vernet, R., Torrent-Farnell, J. et al. Health care, social, educational, and employment needs of individuals affected by rare diseases and their families in Catalonia, Spain. Orphanet J Rare Dis (2026). doi:10.1186/s13023-026-04281-x 

This study aims to describe the perceived needs of individuals affected by rare diseases and their families, regarding healthcare, social, educational, and employment systems.

Health care, social, educational, and employment needs of individuals affected by rare diseases and their families in Catalonia, Spain