The study aims to investigate and evaluate the health-related, psychosocial and economic impacts of the disease. The results of the interdisciplinary project, which combines clinical expertise with expertise in health economics, health care research and psychosocial research, are intended to provide a basis for improving treatment, care and support.
In this project, the DZNE works closely with international partners from France (Paris Brain Institute) and Canada (McMaster University) as well as with the healthtech company Aparito and various European university hospitals. "PROFA" is being carried out in six study centers in Europe. It is planned that more than 200 patients aged 12 years and older will participate in the study.
Tuesday, July 12, 2022
Rare motor disorder: International study investigates living situation of people with Friedreich’s Ataxia
AAAS and EurekAlert. NEWS RELEASE 11-JUL-2022
DZNE - GERMAN CENTER FOR NEURODEGENERATIVE DISEASES
